PSORIASIS PATIENTS
SOLIDARITY ASSOCIATION
Patient Experience Summit Psoriasis A Global Health Issue
24 OCTOBER 2020
What PEX Summit Is All About
Turkish Psoriasis Patients Solidarity Association organized the International Psoriasis and Arthritis Quality of Life Conference on the theme of Ways to Increase the Quality of Life for Psoriasis Patients on 24 October 2020, on the online platform due to the pandemic conditions.
In this event, which was held with the participation of IFPA member countries, patient associations and experts in the field, the effects of psoriasis on the quality of life of the individual and, in a sense, the psychosocial burden of psoriasis on the individual were revealed.
The event also focused on how these effects can be improved and how psoriasis patients can improve their quality of life both in their social life and in their treatment processes, in the context of health communication, patient rights and health law.
Keynote Speaker
The 3rd International Psoriasis and Arthritis Quality of Life Video Conference brings together international expert speakers, especially International Federation of Psoriasis Associations ( IFPA), experienced in psoriasis.
Sedef Hastaları Dayanışma Derneği
Prof.Dr. / Şişli Etfal Eğitim ve Araştırma Hastanesi Dermatoloji Kliniği
Prof. Dr. / World Experience Campus
Doç. Dr. / Endokrinoloji ve Metabolizma Hastalıkları Uzmanı
Parkinson Hastaları Derneği Kurucu Başkanı
El Bebek Gül Bebek Derneği
Prof. Dr. / Hasan Kalyoncu Üniversitesi Sağlık Bilimleri Fakültesi Dekan Yardımcısı
Uzm. Dr. / Estetik Dermatoloji
Prof.Dr. / 9 Eylül Üniversitesi Hastanesi, Romatoloji ve İmmünoloji Bölümü
Doç. Dr. / Sağlık Bilimleri Fakültesi / Sağlık Yönetimi Bölümü
Doç. / Ankara Üniversitesi İletişim Fakültesi
Sedef Hastaları Dayanışma Derneği Üyesi
Sedef Hastaları Dayanışma Derneği Başkanı
İnflamatuvar Bağırsak Hastaları Dayanışma ve Yardım Derneği
Keynote Speaker
Silvia Fernandez Barrio
IFPA - ARGENTINA
IFPA (International Federation of Psoriasis Associations)
MAIN HALL
09.45-10.00
Introduction speech
Association President Mustafa Yıldırım
1st SESSION
Health Communication and Its Effect on Quality of Life
10.00-11.30
Health Promotion
Prof. Dr. Can Bilgili
Health Communications
Assoc. Dr. Deniz Sezgin
Patient Quality of Life
Prof. Dr. Tülay OrtabaÄŸ
11.30 - 11.45 Call
2nd SESSION
Ways to Improve the Quality of Life in Social Life
11.45-13.15
Social Environment and Family Relations, Social Acceptance
Sertan Tirkayi
Psychosocial Burden of Psoriasis, Adaptation to Social Life
Prof. Dr. Ilknur Altunay
Patient Rights and Health Law
Assoc. Dr. Gurkan Sert
13.45 - 14.00 Lunch Break
3rd SESSION
Ways to Improve the Quality of Life in Treatment
14.00-15.30
Psoriasis and Metabolic Syndrome
Assoc. Dr. Ece Harman
Who Should Consider Psoriasis and Arthritis?
Prof. Dr. Ismail Sari
The Effect of Targeted Phototherapy on Quality of Life
Serafettin Saracoglu
15.30 - 15.45 Call
4th SESSION
Opinions of Patient Associations
15.45 - 17.15
Views of IFPA Member Countries
Silvia Fernandez Barrio: ARGENTINA
"AERSO's Activities Related to Psoriasis"
Hand Baby Rose Baby Association - Ä°lknur Okay:
"I Was Born Premature, How Will My Future Be?"
Parkinson Patients Association - Gülnur UÄŸurlu Kelçe:
'' Vital, Physical and Psychological Distress in Parkinson's Disease ''
Inflammatory Bowel Patients Solidarity and Solidarity Association - Ercan Zorlu:
Patient Rights in Health (In Autoimnum Diseases)
Psoriasis Patients Solidarity Association - Birsen Ablak:
"Approaches of Psoriasis Patients to Disease"
17.15-17.30
Closing Speech
Association President Mustafa Yıldırım
Advisory and Organizing Committee
Türkiye Sedef Hastaları Dayanışma Derneği Başkanı
Profesör, World Experience Campus Kurucusu
Prof. Doktor / Gaziantep Üniversitesi Tıp Fakültesi Deri ve Zührevi Hastalıklar Ana Bilim Dalı Öğretim Üyesi
Eğitmen, Araştırmacı-Yazar
BNP Paribas Cardif Türkiye’de İletişim ve İnovasyon Başkanı